Sunday, August 16, 2009


Just a quick note to let you all know what we have been up to and how we have been. This last week was ... crazy! Monday Justus had a cardiology appointment. Wednesday brought a yearly eye exam for Isaac and dental exams for five of our kiddos with it, and then Thursday was a surgery for me. Hectic.
Justus is doing great. His saturation levels (oxygen) were in the 90's. Which is outstanding. His EKG was great. His echo cardiogram went well also. There was a bit of a change in the pressure gradient regarding his lungs. This is an indicator that his lungs are working a bit harder. This is to be expected with children who have Down Syndrome. They typically are sick more often - creating an opportunity for the lungs to develop pulmonary disease which creates a stiffening of the lungs. This is why the specialists recommend having the open heart surgery prior to the child's first birthday - trying to beat that. The change in pressure gradient paired with Justus having had two minor blue baby spells equates to his little body telling us it is time for surgery. The cardiologist is suggesting late September or early October for the surgery. Wow! It's already upon us! We are praying for Justus to not be sick during this time. If he is sick at the time of surgery they will cancel and postpone for six weeks. I am not "looking forward" to the surgery - but am anxious to get done and out of the way. Make sense? We have decided to go with Seattle Children's Hospital for various reasons. Please - I ask on behalf of my sweet baby boy - if you think of him, please pray for the surgery to take place without illness delaying it, please pray for the surgeons to have steady hands and wisdom; and please pray for a smooth and swift recovery.
Isaac's eye appointment went well. There are no changes in his retina from last time. (a small spot was noticed behind his eye - but does not seem to be affecting his sight) We praise the Lord for this wonderful news. He is not "out of the woods" yet. The doctor is wanting these yearly exams to take place until he is out of his teenage years. For those of you who do not know - they are continually checking for Stargardt's Disease. He may or may not have it. Several years ago at a regular eye exam the doc. noticed pigment spots in his retina - thus the yearly exams now. Phillip and I have peace and know that with everything else: the Lord has this in His control as well.
Kids did great at the dentist - which by the way - is the coolest dentist's office EVER for kids. It's like Disneyland - for teeth!
My surgery went well also. I am healing nicely - just a little sore. I had my gallbladder removed on Thursday due to some horrible attacks from a stone that had lodged and blocked a duct. I am thankful that it went well and I am on the road to recovery. My hubby took AWESOME care of me.
Crazy. Yes. However, I am confident that the Lord has designed these things to take place right now for many reasons I won't get into. I love my Lord for allowing these trials and I will praise Him for them. Sound weird? Maybe so, but I can only trust in Him. I can have peace - or fret. I can find joy - or stress. I have gone back and forth, but have found refuge in my Saviour.
Love you all - and I am so thankful for your prayer and support!


Lisa's Blessed A Latte said...

Too weird Charissa...I had my gallbladder out August 13, 2007..Praying for you and that Sweet baby of yours....Issac too...I know all about yearly eye exams. Christian has to have yearly eye exams too because of his eye injury. He has a High chance of developing Glacoma...I am so Thankful we serve a Risen Savior who has it all under control,and everything is in HIS hands....{{{{Hugs}}}

Anonymous said...

We are praying for you all!! We miss you. Love you!!


Anonymous said...

I cannot imagine what you are going through. But I do know that God does. His ways our sure, they will be strength to you. I will lift Justus up in prayer for God hears all our prayers. Psalm 121:2

Love you, Vi Abing

Jenny said...

We will continue to pray for baby Justus to be well in these upcoming months! Yes, it does make sense to not be "looking forward" to the surgery but be ready to get it out of the way. :) If there is anything that the Savage family can do for you during this time, please let us know! It would be a blessing to take some of the smaller children for a day so that you could rest. It is such a blessing to see you choosing peace and joy continually through these burdens! I know that it can be so hard! Thank you for the update!