Yes, we are home. This posting comes late due to some issues with our wireless router - so I apologize for that. We were discharged on Saturday and decided to spend the night at the Ronald McDonald house to just be sure everything was okay. We liked that we were right next to the hospital just in case "Butter" took another unexpected turn. Justus aka; Butter, was really cranky all day on Saturday - he also had an allergic reaction to some meds. they gave him for pain. We got to the RM house and were able to finally get him settled. He then slept solidly all night and only woke to nurse and fall back asleep! My heart sang! Nothing like watching your sweet infant who has endured so much sleep peacefully next to you. I was relieved.
For now - I will keep it short and just say we are home. Justus is still trying to settle into being back to himself. We take great care in the way we hold him - b/c his sternum is still healing. He goes and sees the cardiologist tomorrow and then the pediatrician next week. We also have to keep all illness away the best we can. But all in all... he is home - and that is AWESOME!!!!
We praise Christ for it all!
Soon I hope to write more of how this all has shaped our family and refined our faith. You cannot walk the halls of Children's Hospital and keep your faith and the hope it offers to yourself. You just can't. If you can ... I would question your faith or at least your desire to be used of God. I hope that I never forget. I hope to never go through anything like that again, but can be thankful for what it has wrought in my heart. Watching children fight for their life and the parents who love them so fervently strikes a deep desire to offer hope and peace. I am happy to be home - but still see the faces of some who are still there, and find myself of heavy heart praying ... praying ... praying.